Get Involved

Want to get more involved in helping make a difference in the lives of people with pulmonary hypertension (PH)? There are many simple and meaningful ways to take part.

You can start by talking with your PH care team or joining a local support group. You can also connect with national PH organizations that work every day to support patients, raise awareness, and fund research. These groups welcome volunteers, advocates, and community members who want to help.

Below are several trusted patient advocacy organizations that make a powerful impact in the PH community.

Stay connected with the Live Learn Breathe community. When you join our mailing list, you’ll receive updates about new educational tools, webinars, events, support resources, and ways to get involved.

Team PHenomenal Hope (Team PH) works to improve the quality of life for people living with PH by building community, raising awareness, and helping those who live with PH. Team PH athletes race around the world to bring attention to PH, raise funds, and inspire hope.

Team PH supports the PH community through programs such as:

• The Meaghan Michelle Hicks Unmet Needs Patient Impact Fund, providing microgrants for PH patients for unmet nonmedical needs (e.g., travel costs, food, portable oxygen concentrator)
• The PHenomenal Impact Fund for Global PH Research, funding international research awards to advance the field
• The Team PH Virtual Support Group, providing regular patient-led online support groups, bringing people together
• Pediatric PHun Days, events for kids living with PH to enjoy with family and friends
• The Let Me Be Your Lungs Program, which builds community by pairing endurance athletes with PH patients

If you want to get involved or learn more about their programs, visit teamph.org.

The Pulmonary Hypertension Association (PHA) is the oldest PH organization in the world and continues to lead the way in education, support, and research. PHA offers:

• A large network of patient and caregiver support groups
• Early diagnosis education programs
• Resources to help patients find PH specialists and specialty care centers
• Programs and grants that support research, awareness, and community outreach

PHA works every day to reduce isolation, provide trustworthy information, involve the PH community, and push toward better treatments and a cure.

You can:

• Join a support group
• Learn more about living with PH
• Find a clinical trial
• Locate a PH specialist near you

Visit PHAssociation.org to explore these resources.

PHaware is a global awareness organization founded by patients, caregivers, and medical professionals. Their mission is to make the public, news media, donors, and investors more aware of pulmonary hypertension. Through innovation, storytelling, campaigns, and technology, PHaware works to educate the world about PH and inspire progress toward a cure.

Learn more at phaware.org.